Parents defend keeping girl a child forever QUOTE
NEW YORK (CNN) -- It's been a year since the parents of a severely disabled child made public their decision to submit their daughter to a hysterectomy, breast surgery and drugs to keep the girl forever small. Today, the couple tell CNN, they believe they made the right decision -- one that could have a profound impact on the care of disabled children worldwide
While unwavering in their belief in the treatment, Ashley's parents continue to insist on anonymity. In the year since Ashley's parents went public, not only did the hospital that sterilized Ashley admit it broke Washington state law, but also the doctor who treated Ashley committed suicide.
Ashley is now 10 years old and, at 4 feet 5 inches tall, has achieved her full height and weight, 63 pounds. The treatment permanently closed her growth plates and took more than a foot off her anticipated height.
"Ashley did not grow in height or weight in the last year, she will always be flat-chested, and she will never suffer any menstrual pain, cramps or bleeding," say her parents, who felt it important to publicly address their decision after repeated interview requests, in the hopes of sharing their experience with other families.
In 2004, Children's Hospital performed a hysterectomy, removed Ashley's breast buds and gave her high-dose estrogen to retard growth and sexual maturation -- a procedure that has risks, but to date has not harmed her, her parents say.
Some ethicists, too, remain staunch in their assessment that the "Ashley treatment" is a violation of not only human dignity, but also of a physician's oath to do no harm.
"I think mutilating surgery involving removal of breast buds is indefensible under any circumstances," says Arthur Caplan, the chairman of the Department of Medical Ethics and director of the Center for Bioethics at the University of Pennsylvania. "Growth retardation is not a substitute for adequate home aides and home assistance."
I'm not in the parents situation, but it really rubs me the wrong way to use surgery and drugs to prevent a child from ever becoming an adult. It's just creepy.